Links Page


(Here is but a taste of the information available to you about Cystic Fibrosis on the internet.
If any of these links do not work, please notify us.)


Contents:

General Information


http://www3.nbnet.nb.ca/normap/CF.htm -- Fantastic  resources here for all aspects of Cystic Fibrosis, built and maintained by Norma Kennedy Plourde,a woman with CF. If you only access one site from this page, choose this one!

http://www.cfri.org -- Cystic Fibrosis Research, Inc.

http://www.cfww.org -- Cystic Fibrosis World Wide

http://www.cff.org -- Cystic Fibrosis Foundation

http://www.cfroundtable.com-- United States Adult Cystic Fibrosis Foundation (USACFA), publishers of the CF Roundtable

http://www.thebreathingroom.org -- Breathing Room provides an intimate, compelling look into the lives of people with Cystic Fibrosis through photography, video, personal writings and other artistic expressions.

http://www.ecfsoc.org -- European Cystic Fibrosis Society

http://www.ccff.ca -- Canadian Cystic Fibrosis Foundation

http://www.cff.org/greaterillinois.htm -- Cystic Fibrosis Foundation - Greater Illinois Chapter

  contact information:
150 North Michigan Avenue
Suite 400
Chicago, IL 60601
p1: (312) 236-4491
p2: (800) 824-5064
fax: (312) 236-2797
illinois@cff.org


http://www.cff.org/peoria.htm -- Cystic Fibrosis Foundation -Peoria Office

  contact information:
4507 North Sterling Avenue, Suite 210
Peoria, IL 61615
p: (309) 682-9240
fax: (309) 682-9244
peoria-il@cff.org

 

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Adventure and Triumph


http://www.lisabentley.com -- Read about Lisa Bentley, an adult with CF, and a professional triathlete who has won 9 international Ironman Triathlons!

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Academic Scholarships


http://www.cfscholarship.org/index.htm -- Cystic Fibrosis Scholarship Foundation. The mission of the Cystic Fibrosis Scholarship Foundation (CFSF) is to provide an opportunity for young adults with CF to further their education at a college or vocational school.

http://www.elizabethnashfoundation.org -- Elizabeth Nash Foundation will award scholarships to assist persons with Cystic Fibrosis to pursue undergraduate and graduate degrees.

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Medical Information


http://hopkins-abxguide.org -- Antibiotic Guide:Johns Hopkins Division of Infectious Diseases

http://www.labtestsonline.org -- Questions about a test your doctor ordered? Lab Tests Online offers 'A public resource on clinical lab testing from the laboratory professionals who do the testing.'

http://www.pslgroup.com/CF.HTM -- Cystic Fibrosis: Doctor's Guide to the Internet includes 'The latest medical news and information for patients or friends/parents of patients diagnosed with Cystic Fibrosis.'

http://www.aarc.org -- American Association for Respiratory Care

http://www.diabetes.org/homepage.jsp -- American Diabetes Association

http://www.nof.org -- National Osteoperosis Foundation

http://www.cff.org/cfservice.htm -- CF Services, Inc. Pharmacy for CF medication needs.

http://www.hhcs.com --Florida CF Pharmacy (HHCS Health Group) for CF medication needs.

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Research/Technical Information


http://www.genet.sickkids.on.ca/cftr -- Cystic Fibrosis Mutation Database

http://www.pseudomonas.com -- Pseudomonas Genome Project

http://www.medscape.com/pulmonarymedicinehome -- Medscape Pulmonary Medicine Home Page

http://www.mdlinx.com/pulmonologylinx/index.cfm -- Pulminologylinx: current pulmonology information for doctors and patients

http://www.elsevier.com/inca/publications/store/6/2/2/2/8/3/index.htt -- Ordering information for the Journal of Cystic Fibrosis, the official publication of the European Cystic Fibrosis Society

http://members.tripod.com/uvicf/index.htm -- Utah Valley Institute of Cystic Fibrosis - 'promoting independent research to ameliorate cystic fibrosis'

http://www.sharktank.org -- Sharktank Research International: "SharkTank Research was formed in 1998 to find a cure to cystic fibrosis through extensive research, critical analysis, and the exchange of ideas. The members of the group either have cystic fibrosis or have children with it." Check here for updates on their research on Glutathione.

http://www.cff.org/research - Cystic Fibrosis Foundation page with information on CF research and clinical trials

http://clinicaltrials.gov/
-- National Institute of Health site provides up-to-date information 'about federally and privately supported clinical research in human volunteers.'

http://www.centerwatch.com -- Center Watch Clinical Trials Listing Service 'The information source for the clinical trials industry.'

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ChicagoLand Personal Webpages


lhuspen@msn.com -- Laurie Huspen, Human Resources Consultant


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Support


http://Cystic-L.org -- Cystic-L, moderated discussion group for the CF community, extensive information on their website, too!

http://www.wellspouse.org -- Well Spouse Foundation, an association of spousal caregivers

http://www.reachingoutfoundation.org/
-- Reaching Out Foundation

http://www.milanfoundation.org -- Milan Foundation for Cystic Fibrosis Education, Awareness and Assistance

http://www.catfoundation.org -- The CAT Foundation: banding together to cure Cystic Fibrosis

http://www.r4stars.org/
-- Reach for the Stars Foundation to benefit indeividuals with Cystic Fibrosis

http://www.cfawareness.org -- National Cystic Fibrosis Awareness Committee

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Transplant Information


http://www.2ndwind.org -- Second Wind Lung Transplant Association, Inc. (Note, this site has a number of good links to other sites with transplant information on the net.)

http://www.illinois-liver.org -- American Liver Foundation

http://www.lifegoeson.com/home1.html-- Illinois Organ & Tissue Donor/Registry

http://www.transweb.org -- TransWeb: All about transplantation and donation.

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Legal Information


CF Legal Information Hotline: 1-800-622-0385, run by Beth Sufian, Esq.

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Illinois Area CF Clinics

 


Children's Memorial Hospital -- Pediatric Program
http://www.childrensmemorial.org/depts/pmcc/cysticfibrosis
contact information:
Appointments: (773) 880-4382
Center Director: Susanna A. McColley, M.D.


Northwestern Memorial Hospsital
-- Adult Program
http://www.nmh.org/
contact information:
Appointments: (312) 695-2003
Center Director: Manu Jain, M.D.


Loyola Medical Center -- Pediatric Program
[webpage]
contact information:
Appointments: (708) 327-9134
Center Director: Youngran Chung, M.D.

Loyola University Medical Center -- Adult Program
http://www.lumc.edu/
contact information:
Appointments: (708) 327-9134
Center Director: Edward R. Garrity, Jr., M.D.


Lutheran General Children's Hospital -- Pediatric Program
[webpage]
contact information:
Appointments: (847) 318-9330
Center Director: Gabriel Aljadeff, M.D.

Lutheran General Hospital -- Adult Program
http://www.advocatehealth.com/luth/
contact information:
Appointments: (847) 759-4770
Center Director: Arvey Stone, M.D.

Rush CF Center
-- Pediatric Program
[webpage]
contact information:
Appointments: (312) 563-2270
Center Director: Girish Sharma, M.D.


Rush Medical Center -- Adult Program
http://www.rush.edu/patients/children/services/
specialties/cysticfibrosis/

contact information:
Appointments: (312) 563-2270
Center Director: Robert Balk, M.D.

 

University of Chicago Hospitals - Pediatric Program
[webpage]
contact information:
Appointments: (773) 702-6178
Center Director: Lucille A. Lester, M.D.

University of Chicago Hospitals - Adult Program
http://www.uchospitals.edu/specialties/pulmonary/
contact information:
Appointments: (773) 702-9660
Clinic Director: Edward T. Naureckas, M.D.


Chicago CF Care Specialists

Glenville, IL
http://www.wecare4lungs.com
contact information:
Appointments: (847) 998-3434
Fax: (847)998-8584
Director: Dr. Steven Boas

Saint Francis Medical Center -- CF Center / Peoria, IL
[webpage]
contact information:
Appointments: (309) 624-9680
Center Director: Umesh C. Chatrath, M.D.

St. Francis Medical Center
-- Adult Program / Peoria, IL
[webpage]
contact information:
Appointments: (309) 624-9680
Center Director: W. Anthony Sauder, M.D.


Carle Clinic Association Dept. of Pediatrics
- Affiliate Program / Urbana, IL
contact information:
Appointments: (217) 383-3100
Center Director: Donald F. Davison, M.D.


Southern Illinois University School of Medicine
-- Affiliate Program / Springfield, IL
http://www.siumed.edu/physurg/index.html
contact information:
Appointments: (217) 524-3880
Center Director: Lanie E. Eagleton, M.D.

 

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last updated June 26, 2006

Sponsors

We are pleased to acknowledge and thank our supporters and exhibitors. Please visit their websites, and find out what services are provided for the CF patient.

 

hill-rom logo

Hill-Rom Company, Inc.

 

solvay logo

Solvay Pharmaceuticals

 

Axcan Scandipharm, Inc.

 

Chiron Corporation

 

Cystic Fibrosis Pharmacy, Inc.

 

Digestive Care, Inc.

 

sourceCF logo

SourceCF

 

Genentech

 

CF Services logo

CF Services Pharmacy

 

Juice Plus+

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