Links Page

(Here is but a taste of the information available to you about Cystic Fibrosis on the internet.
If any of these links do not work, please notify us.)

Contents:

General Information
Adventure and Triumph
Academic Scholarships
Medical Information
Research/Technical Information
ChicagoLand Personal Webpages
Support
Transplant Information
Legal Information
Chicago Area CF Clinics
Sponsors

General Information

http://www3.nbnet.nb.ca/normap/CF.htm -- Fantastic  resources here for all aspects of Cystic Fibrosis, built and maintained by Norma Kennedy Plourde,a woman with CF. If you only access one site from this page, choose this one!

http://www.cfri.org -- Cystic Fibrosis Research, Inc.

http://www.cfww.org -- Cystic Fibrosis World Wide

http://www.cff.org -- Cystic Fibrosis Foundation

http://www.cfroundtable.com-- United States Adult Cystic Fibrosis Foundation (USACFA), publishers of the CF Roundtable

http://www.thebreathingroom.org -- Breathing Room provides an intimate, compelling look into the lives of people with Cystic Fibrosis through photography, video, personal writings and other artistic expressions.

http://www.ecfsoc.org -- European Cystic Fibrosis Society

http://www.ccff.ca -- Canadian Cystic Fibrosis Foundation

http://www.cff.org/greaterillinois.htm -- Cystic Fibrosis Foundation - Greater Illinois Chapter

http://www.cff.org/peoria.htm -- Cystic Fibrosis Foundation -Peoria Office

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Adventure and Triumph

http://www.lisabentley.com -- Read about Lisa Bentley, an adult with CF, and a professional triathlete who has won 9 international Ironman Triathlons!

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Academic Scholarships

http://www.cfscholarship.org/index.htm -- Cystic Fibrosis Scholarship Foundation. The mission of the Cystic Fibrosis Scholarship Foundation (CFSF) is to provide an opportunity for young adults with CF to further their education at a college or vocational school.

http://www.elizabethnashfoundation.org -- Elizabeth Nash Foundation will award scholarships to assist persons with Cystic Fibrosis to pursue undergraduate and graduate degrees.

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Medical Information

http://hopkins-abxguide.org -- Antibiotic Guide:Johns Hopkins Division of Infectious Diseases

http://www.labtestsonline.org -- Questions about a test your doctor ordered? Lab Tests Online offers 'A public resource on clinical lab testing from the laboratory professionals who do the testing.'

http://www.pslgroup.com/CF.HTM -- Cystic Fibrosis: Doctor's Guide to the Internet includes 'The latest medical news and information for patients or friends/parents of patients diagnosed with Cystic Fibrosis.'

http://www.aarc.org -- American Association for Respiratory Care

http://www.diabetes.org/homepage.jsp -- American Diabetes Association

http://www.nof.org -- National Osteoperosis Foundation

http://www.cff.org/cfservice.htm -- CF Services, Inc. Pharmacy for CF medication needs.

http://www.hhcs.com --Florida CF Pharmacy (HHCS Health Group) for CF medication needs.

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Research/Technical Information

http://www.genet.sickkids.on.ca/cftr -- Cystic Fibrosis Mutation Database

http://www.pseudomonas.com -- Pseudomonas Genome Project

http://www.medscape.com/pulmonarymedicinehome -- Medscape Pulmonary Medicine Home Page

http://www.mdlinx.com/pulmonologylinx/index.cfm -- Pulminologylinx: current pulmonology information for doctors and patients

http://www.elsevier.com/inca/publications/store/6/2/2/2/8/3/index.htt -- Ordering information for the Journal of Cystic Fibrosis, the official publication of the European Cystic Fibrosis Society

http://members.tripod.com/uvicf/index.htm -- Utah Valley Institute of Cystic Fibrosis - 'promoting independent research to ameliorate cystic fibrosis'

http://www.sharktank.org -- Sharktank Research International: "SharkTank Research was formed in 1998 to find a cure to cystic fibrosis through extensive research, critical analysis, and the exchange of ideas. The members of the group either have cystic fibrosis or have children with it." Check here for updates on their research on Glutathione.

http://www.cff.org/research - Cystic Fibrosis Foundation page with information on CF research and clinical trials

http://clinicaltrials.gov/ -- National Institute of Health site provides up-to-date information 'about federally and privately supported clinical research in human volunteers.'

http://www.centerwatch.com -- Center Watch Clinical Trials Listing Service 'The information source for the clinical trials industry.'

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ChicagoLand Personal Webpages

lhuspen@msn.com -- Laurie Huspen, Human Resources Consultant

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Support

http://Cystic-L.org -- Cystic-L, moderated discussion group for the CF community, extensive information on their website, too!

http://www.wellspouse.org -- Well Spouse Foundation, an association of spousal caregivers

http://www.reachingoutfoundation.org/ -- Reaching Out Foundation

http://www.milanfoundation.org -- Milan Foundation for Cystic Fibrosis Education, Awareness and Assistance

http://www.catfoundation.org -- The CAT Foundation: banding together to cure Cystic Fibrosis

http://www.r4stars.org/ -- Reach for the Stars Foundation to benefit indeividuals with Cystic Fibrosis

http://www.cfawareness.org -- National Cystic Fibrosis Awareness Committee

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Transplant Information

http://www.2ndwind.org -- Second Wind Lung Transplant Association, Inc. (Note, this site has a number of good links to other sites with transplant information on the net.)

http://www.illinois-liver.org -- American Liver Foundation

http://www.lifegoeson.com/home1.html-- Illinois Organ & Tissue Donor/Registry

http://www.transweb.org -- TransWeb: All about transplantation and donation.

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Legal Information

CF Legal Information Hotline: 1-800-622-0385, run by Beth Sufian, Esq.

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Illinois Area CF Clinics

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Sponsors

We are pleased to acknowledge and thank our supporters and exhibitors. Please visit their websites, and find out what services are provided for the CF patient.

Hill-Rom Company, Inc.

Solvay Pharmaceuticals

Axcan Scandipharm, Inc.

Chiron Corporation

Cystic Fibrosis Pharmacy, Inc.

Digestive Care, Inc.

SourceCF

Genentech

CF Services Pharmacy

Juice Plus+

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