http://chicagocfawareness.org/blog People with Cystic Fibrosis in the Greater Chicagoland area joined together year-round meeting, talking, e-mailing, corresponding, texting, blogging, growing, learning, loving...living Tue, 07 Nov 2006 22:11:34 +0000 http://backend.userland.com/rss092 en Annually the United States spends $3.5 billion on advertising medicines (prescribed and over-the-counter); the rest of the world spent only $1.5 billion. What's wrong with this picture? (Source: State of the World 2001). http://chicagocfawareness.org/blog/archives/27 For Halloween, the Canadian Cystic Fibrosis Foundation and CARSTAR Collision Repair centers are sponsoring the purchase of Frightlight glow sticks for trick-or-treaters. What would be appropriate for Chicago? Deep-dish pumpkin pie? Frango Pan de Muerto? http://chicagocfawareness.org/blog/archives/26 Carrier and prenatal screening for CF is available at the Chicago Center for Jewish Genetic Disorders. According to their informational page, the incidence of Cf among Ashkenazi Jews (Jews with Central and Northern European ancestry) is the same as in other caucasian groups. Chicago boasts the third largest ... http://chicagocfawareness.org/blog/archives/25 Jerry interviewed four Directors of USACFA (United States Adult Cystic Fibrosis Association) during the August 2006 Cystic Fibrosis Research Institute annual conference in Redwood City, CA. Listen to it on your PC or MP3 player:CF Roundtable Gives Back to the Cystic Fibrosis Community (episode #0040). They talk about ... http://chicagocfawareness.org/blog/archives/24 The U.S. National Institutes of Health contains links to, presumably, all federally and privately supported CF clinical trials that are currently recruiting volunteers. The individual pages describe the study, list the sponsoring institution, trial protocols, prospective enrollment, dates, and inclusion/exclusion criteria. The site is part of ClinicalTrials.gov, a ... http://chicagocfawareness.org/blog/archives/23 In the guise of a significant other to a USACFA Director, I accompanied Cynthia Dunafon to this year's CFRI educational conference in Redwood City, CA, south of San Francisco, hosted at the Sofitel San Francisco Bay.  Attendance was estimated at around 200; most attendees were West Coasters, though some came ... http://chicagocfawareness.org/blog/archives/22 All Aboard Chicago CF! is now available for postings and follow-ups. No registration is necessary--if you have a browser and something to communicate to the greater Chicagoland community, this is the fastest way to publish in cyberspace. Either book mark it or use the Link on this blogsite. http://chicagocfawareness.org/blog/archives/21 CF was first identified in an Arab country in 1958 (Lebanon). Four years later, three other Lebanese children were diagnosed, one with an Arab pedigree going back for four generations. Since then, cases have been confirmed in the United Arab Emirates, Jordan, Kuwait, Bahrain, and Saudi Arabia. Under-diagnosis at child ... http://chicagocfawareness.org/blog/archives/20 Welcome to Blog on Chicago CF, the official blog of the Chicagoland Adult Cystic Fibrosis Association and annual Chicago Cystic Fibrosis Awareness Day! The purpose of this blog is to facilitate, and build, communication within the Greater Chicago Cystic Fibrosis community. We eagerly solicit postings of any nature that are ... http://chicagocfawareness.org/blog/archives/11 Melanie Ann Apel, a RT from the Chicago area, has published a book this April bursting with interviews of Chicago Cfers and family members. She is scheduled to participate in a breakout session at this year's Awareness Day, and will be available to answer questions about her latest book. IF you ... http://chicagocfawareness.org/blog/archives/19