People with Cystic Fibrosis in the Greater Chicagoland area joined together year-round meeting, talking, e-mailing, corresponding, texting, blogging, growing, learning, loving...living.
Melanie Ann Apel, a RT from the Chicago area, has published a book this April bursting with interviews of Chicago Cfers and family members. She is scheduled to participate in a breakout session at this year’s Awareness Day, and will be available to answer questions about her latest book.
IF you have read her book, tell us about it, or post a review.
We are looking for dedicated individuals with good communication skills and a modicum of expertise with blogs and online message boards to help moderate our website (http://chicagoawareness.org), blog (http://chicagoawareness.org/blog) or message board (under construction). This will entail using a browser to monitor discussions, post articles and images of interest to the greater Chicagoland community, delete spam on a regular schedule, and sharing the tasks with others. We also badly need an individual who will periodically check the links of these venues and add others. If interested contact us at cacfa@chicagocfawareness.org
Do you bike, swim, jog, pump iron or shoot hoops aggressively, and juggle CF? This year’s Awareness Day program needs CFers who pursue sports or physical fitness with a passion, who are willing to share their stories as part of an afternoon breakout session devoted to Cf and exercise. Please contact Maureen Garvey at mgarvey@lumc.edu or (708) 327-9134.
Comments–what kind of physical fitness presentation would you like to see at the 2006 Awareness Day? Speakers? Topics?
We need a dedicated digital photographer who will document the Awareness Day in images, photographing the plenary sessions, circulating among the breakout-sessions, and requesting portrait photos of families, friends and individuals. If interested contact us at cacfa@chicagocfawareness.org
We need someone with a cellphone and a cool head who will check that the audio/visual equipment in the breakout session rooms is in place & operational, and who is constitutionally steeled to deal with random conference-related contingencies. Please contact Maureen Garvey at mgarvey@lumc.edu or (708) 327-9134.
If you know of an individual or company that specializes in head-and-neck massages, preferably with experience in treating individuals with chronic illnesses, and that would be willing to “ply their trade” during the Awareness Day in exchange for free publicity, please contact Maureen Garvey at mgarvey@lumc.edu or (708) 327-9134.
Don’t leave with the impression that every job is accounted for! Volunteer, and we will probably put you to work–ask Maureen.
Do you have ties to a newspaper, newsletter, radio station, television? We are hungry for local publicity that promotes the Awareness Day as a means of reaching CFs, family & friends who are not a part of the Chicagoland CF clinic network. Please contact Maureen Garvey at mgarvey@lumc.edu or (708) 327-9134.
If you are running a website or blog and would like to post a link to the Chicago Awareness Day website or blog–please do so! And–if you are running a CF-related internet site, post it here–leave us a comment.