Participation in a Clinical Trial:What motivates us? (cont’d)[or: The familiar and the not-so-familiar results]
How can an active CF community engage medical researchers?…
By not just following the advice of medical experts, but also by understanding the reasons for compliance in your own treatments.
By discussing the issues/implications of research for the CF community with those on the leading edge of research.
By interpreting the informed consent form (the document you sign when you begin a clinical trial) as a mandate to assess the system.