| This is the most current version of the
2006 program (current as of Oct. 16)—check back
for pending changes.
MORNING SESSION
8:00-8:40 Registration/Continental Breakfast
8:40-9:00 Welcome Address
- Review of infection control for the day
- Presentation of website updates and new features
-Short Survey
9:00-10:00 CF Research Update
Dr. Youngran Chung
Loyola University Hospital, CF Center Director
10:00-11:00 Participating in Research Studies; Working New Therapies
into your Daily Routine
Patient/Family Panel
11:00-11:30 Break/Visit Exhibits/Local
Art Projects
11:30-12:30 Ask the Experts: Question & Answer Panel
Pose your questions to a panel of CF experts.
12:30-1:45 Lunch & Comedy Break
12:30-12:45 Featuring the comedy of Tony Talley, PFT technician (Children’s
Memorial Hospital) and founder of Comics For a Cure (a CF fundraiser!).
Round Table topics during lunch include:
Newly Diagnosed, Going to College, Transition to Adult Care, Nutrition, Siblings,
Understanding PFTs, and others. There will also be open tables for general
discussions.
AFTERNOON BREAKOUT SESSIONS
2:00-3:00 pm
Stress Busters/Relaxation and the Mind/Body Connection
Carolyn Utech, LSW
Rush Presbyterian St. Luke’s Medical Center
CF Nutrition Strategies for
All Ages
Carrie Ek, LD, RD
Children's Memorial Hospital General Open Session
This session is an opportunity to learn about a variety of topics.
1) Staff
from the Chicago CF Foundation office will be available to explain how
you can get
involved with CFF; CF caregivers will also be available.
2) Melanie Ann Apel, author of Cystic Fibrosis: The Ultimate
Teen Guide (2006) will be available to discuss her book and issues of communication
between those within and outside the CF community.
3:00-3:45 pm
Pulmonary Rehab/Exercise in CF at different stages
Speaker TBA
Q-and-A session on Patient Advocacy: Insurance, disability benefits,
Medicare & Medicaid …..what
are my options?
CF Social Workers
Cystic Fibrosis Related Diabetes (CFRD)
Rose Briars, R.N., N.D., PNP, C.D.E.
Diabetes Clinical Program Director
LaRabida Children’s Hospital
3:45-4 pm Evaluation & Suggestions for 2006
An earlier
version of the 2006 Awareness Day Program is
available in PDF format. Check back later for the final version. | 
